A burden

This disease has served nothing but an inconvenience to my life.

At first, there were relapses, as I would wear heels or flats and my legs would weaken, causing me to be unable to move. I got on Ocrevus and that has stopped MS’ evil progression. But I am now wheelchair bound. Is this temporary or permanent???

Then there were the symptoms of heat intolerance in the summer, drastic fatigue, iron deficiency, and appetite suppression due to the drugs that treat my everyday symptoms.

N O W, enormous blisters which pop tearing my skin several dermis  layers have come to take my peace.

 I can’t feel from the waist down, a tragedy with this disease, but not being able to feel is a blessing. I know my skin and feet are traumatized 😭. 

Getting back on high prescription oddly I feel is my only savior. 

I feel like I’m an inconvience to my partner and to myself. If I’m not in ER, I’m on Telrheslth with my MS specialist trying to figure out where/what TF do I do. What went wrong? Can it be corrected? Is it permanent? What drug do I have to be on to possibly fix this bullshit 💢?! Because I hate Big Pharma, but for relief I’ll gladly take it.

Today you read that I forever feel like I'm in—the sunken place.

Fuck MS’ trenchery on my life.