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Hello.

Welcome to my diary. Here I share my journey and life with multiple sclerosis (MS). 

SPR to SMR Edit

SPR to SMR Edit

Oh my goodness 😑 the heat. Since “spring has sprung,” I’ve been avoiding the sun and horrid waves of humidity by sheltering in place, at home (68 C). From experience, (my early MS days) I know from April onward the weather will only get worse for me and my heat sensitivity. Lately, I’ve been battling with myself to eat at least three times a day, dedicating time to fixing my scars, and also, all the while, trying to live an unapologetic life with this disease in this got damn heat.

Earlier on in March I began to notice the “spring” heat. In North Florida it is thick, wet and suffocating. Now, we’re headed into July and I feel as if I'm near death from simply walking to my Audi at 10a!

Hell is near 😒.

In other news: it’s been a little over a year, the social recluse in me is bored and excited to get out 😬 and about 😬. Yes, 🙄 I know my immune system is compromised 😒, 👆🏾but I miss seeing movement, seeing people—to a certain extent and being around action. I plan to be safe, to gladly don my mask and keep to social distancing even after herd immunity.

So, what am I planning to wear as the world opens up?

Great question 😏. I’m going crisp whites, nudes, golden tones, midis and sneaks. Thanks to drop-foot I am working to incorporate more sneakers into my everyday looks. With drop-foot significantly in my right foot (it drops and drags everywhere!) I am attempting to work on taking it slow and adjusting within my space—not allowing my disability to own/run me.

The pre-COVID me, would have held strong to my social reclusive tendencies, ✋🏾post-COVID, with my mask in tow and drop-foot dragging behind (AFO tbd) I find myself craving human interaction. I want these spring and summer vibes to bring low heat (wishful thinking), forward positive human connectivity and with less, to little, to no more cases or deaths due to “The Vid”. Let's face it, we’ve been jailed inside of our homes, for more than a year now, looking at the world and people tumble to now (hopefully) finding our place within this new normal.

Diagnosed with MS four years ago, and wanting to finally🙄 be successful in spite of this disease, I’ve learned from trial and error to tailormy spring style, because 👏🏾this 👏🏾Is 👏🏾the 👏🏾season to be a hottie and not 👆🏾a hot mess. With one foot broken foot, drop-foot and heat sensitivity this season calls for easy-to-wear lightweights, whites, midi dresses, gold tones, sneaks and dark lip (it's my thing now).

Nike playsuit, old.

Nike playsuit, old.

Bodycon midi | Custom staff | Gucci Watch, coonsigned.

Bodycon midi | Custom staff | Gucci Watch, coonsigned.

Cropped lettuce leaf,  similar here | Deniem, similar here.

Cropped lettuce leaf, similar here | Deniem, similar here.

S to S, take ‘22

S to S, take ‘22

Drop-Foot Nightmares

Drop-Foot Nightmares