Dirty Computer
Never in this life would have thought I would be a “dirty computer,” reference Janelle Monae. I have two devices implanted throughout my body. The first phase was a battery implanted hat assists in regulating my output of urine. I found I was using the restroom on myself, even after going to the bathroom. This device is implanted in my butt cheek, and I monitor it with a computerized device. This device ensures I do not urinate on myself 🙄.
If I start to use the restroom on myself, like I was prior at work, I increase the settings of the controller, which trigger an uptick in my butt to “tighten up” and decrease my urine flow on myself.
A burden or a blessing?
The second, is the baclofen pump. Left side of abdomen which delivers medicine directly to my spine. I was on pills until I was taking too many high dosages to curve the spasms that would control my paralyzed bottom half. The pump is attached to a catheter (tube), which helpsdirect the medicine right to a specific area of the spinal” cord (called the intrathecal space). This allows the medication to be delivered exactly where it works to help reduce the spasticity caused by MS.
A burden or a blessing?
the third hurdle the btain.
This disease is uncompromising. A lot of fighting for my freedom. For my independence against this disease.
If MS was a person or thing it would be labeled diabolical. I use to walk, now I’m in a wheelchair due to severe nerve damage. I have a Baclofen pump to control my endless spasms that would knock me out of my wheelchair daily. I am now confined to a wheelchair because my legs have lapsed due to nerve damage and this disease. I wake up every day with my bottom half paralyzed. I woke up from a nap to only one leg being operable. Doctors ran tests not knowing what sickness or effects have caused my legs to stop working.
A burden or a blessing?
The effects of this disease can be crippling. demoralizing. It takes mind over matter to keep pushing through. I’m learning to not let this disease defeat or control me. To not be easily overwhelmed, but positively reactive in order to overcome the illness of this chronic disesss.
A burden or a blessing?
Each day I choose to allow this disease to teach me to be a better student, wife and mother. I choose to allow my trials to form me into being a blessing. This journey has not and won’t be easy.
